PH CARE COVID survey has been published in the OJRD!

PH CARE COVID survey has been published in the OJRD!

We received a great present for our #WorldPHDay celebration from the Orphanet Journal of Rare Disease (OJRD): the long awaited article on PH CARE COVID survey has been published in the first days of May!

The full article is available from here: https://rdcu.be/cjOCU
Feel free to use&share it within your network!

We would like to thank the whole patient community again for the efforts to make it happen!

You can read more about this initiative here.

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