Please find below some useful links. You can find sources of information about PH associations, other non-profit organizations as well as authorities, scientific societies and clinical trial registries.
PH associations in Europe
- Austria: www.lungenhochdruck.at/, Facebook
- Belarus: www.phbelarus.by
- Belgium: VZW: www.ph-vzw.be/, Facebook HTAP: htapbelgique@hotmail.com
- Bosnia and Herzegovina: ugphbih@gmail.com
- Bulgaria: PHA: todor.mangarov@abv.bg BSPPH: http://www.bspph.net/, Facebook
- Croatia: www.plavakrila.hr
- Czech Republic: http://www.plicni-hypertenze.cz/, Facebook
- Denmark: www.pah.dk
- Finland: pha.fin@gmail.com
- France: http://www.htapfrance.com, Facebook
- Germany: http://www.phev.de/, Facebook
- Greece: http://www.hellenicpulmonaryhypertension.gr, Facebook
- Hungary: www.tudoer.hu, Facebook
- Ireland: http://www.pulmonaryhypertension.ie/pha-ireland/
- Israel: www.phisrael.org.il, Facebook
- Italy: AMIP: http://www.assoamip.net, Facebook AIPI: http://www.aipiitalia.it, Facebook
- Latvia: http://www.phlatvia.lv, Facebook
- Lithuania: www.plautinehipertenzija.lt
- Netherlands: http://www.pha-nl.nl/, Facebook
- Norway: http://www.pha-no.com/, Facebook
- Poland: http://www.phapolska.org/, Facebook
- Portugal: http://www.aphp-hp.org/, Facebook
- Republic of Macedonia: Facebook
- Romania: PHADER: www.phader.eu HTAP: http://www.htap.ro/
- Russia: www.nurm.ru, Facebook
- Slovenia: www.pljucna-hipertenzija.si, mihatedi@gmail.com, Facebook
- Slovakia: www.phaslovakia.org, Facebook
- Spain: ANdHP: http://www.hipertensionpulmonar.es/, Facebook FCHP: www.fchp.es, Facebook, Twitter
- Sweden: www.pah-sverige.se, Facebook
- Switzerland: SPHV: http://www.lungenhochdruck.ch, Facebook HTPA: lydia_mb@bluewin.ch
- Turkey: uatli@hotmail.com
- UK: http://www.phassociation.uk.com/
- Ukraine: www.pha.org.ua, Facebook “Sister Dalila” Charity http://poryatunok.info/
PH Medical centers
- UK and Ireland: http://www.pulmonaryhypertensioncentres.co.uk
PH Associations around the world
- USA: http://www.phassociation.org/ , http://www.phaware.global/
- Canada: http://www.phacanada.ca/
- Latin America Society: http://sociedadlatinahp.org
- Saudi Arabia: http://www.saph.med.sa/
- South Africa: www.phsa.org.za
- Japan: http://www.pha-japan.ne.jp/, http://aphj.org
- China: http://www.phachina.com/
- Australia: http://www.phaaustralia.com.au/
- New Zealand: http://www.nzpah.com/
- Singapore: http://www.phsingapore.org/
Rare Diseases Associations
- EURORDIS www.eurordis.org
- Orphanet: http://www.orpha.net
- NORD: http://www.rarediseases.org/
European Patient associations (all diseases)
- European Federation of Allergy and Airways Diseases Patients’ Associations: https://www.efanet.org/
- European Patients’ Forum: http://www.eu-patient.eu/
Clinical trials registers
- European clinical trials register: www.clinicaltrialsregister.eu
- US register: http://clinicaltrials.gov/
Drug regulatory authorities
- European Medicines Agency http://www.ema.europa.eu/ema/
- US Food and Drug Administration http://www.fda.gov/
Scientific Societies
- European Society of Cardiology: http://www.escardio.org
- European Respiratory Society http://www.ersnet.org/
- American Thoracic Society: http://www.thoracic.org
Research
- Ludwig Boltzmann Institute: http://www.lbg.ac.at/en
- Pulmonary Hypertension Research group: http://www.hypertensionarteriellepulmonaire.ca/index.php?id=787&L=2
- Association for Research in CTEPH: http://www.cteph-association.org/