The European strategy for data proposed the establishment of domain-specific common European data spaces. The European Health Data Space (‘EHDS’) is the first proposal of such domain-specific common European data spaces. It will address health-specific challenges to electronic health data access and sharing, is one of the priorities of the European Commission in the area of health and will be an integral part of building a European Health Union. EHDS will create a common space where natural persons can easily control their electronic health data. It will also make it possible for researchers, innovators and policy makers to use this electronic health data in a trusted and secure way that preserves privacy.

Ensuring the full potential of EHDS: Stakeholders’ recommendations

Such data space, however, needs to meet specific criteria to facilitate integrated health care in Europe and contribute to a higher level of services with greater satisfaction of the patients.

To highlight these criteria 35 associations joined their forces and issued recommendations.

For more information: https://www.phaeurope.org/wp-content/uploads/ehds-consensus-final-25-11-2022.pdf

MEP Lung Health Group event – Improving lung health through the future European Health Data Space

The event will mark the launch of the European Lung Health Group (ELHG) policy brief on the future European Health Data Space (EHDS). This new policy brief will expand on the Breathe Vision 2030 on the topic of digital health. Digital health experts, policy makers, healthcare professionals and patient representatives will come together to discuss how the expectations from the respiratory community could be reflected in the future European Health Data Space (EHDS) legislation, and its huge potential to improve prevention, diagnosis, management and quality of life of people living with lung diseases.

For more information and to register for the event, please visit the event page: https://www.ersnet.org/events/mep-lung-health-group-improving-lung-health-through-the-future-european-health-data-space/