Dear Friends,

I am delighted to present the Winter 2019 edition of Mariposa. When such a report is compiled at the yearend I am always surprised about the huge amount of projects we participated in. Following challenging times we successfully rebuilt our connections with the main stakeholders on the rare disease space, the European level umbrella organizations and more specifically on the PH field. We can be also proud that in 2019 we got back on growing track: we managed to increase the number of our members. At the Annual General Meeting the applications of Estonia and Moldova were accepted, which means they became our full members.

PHAE – Mariposa Journal (2019 Winter N.23)